I have been a member in the Swedish RP-society since 1996 and for the last year I have been a member of the board.
I recieved my diagnosis at an age of 18. I am the only known person in our family with this kind of disease.
When the truth hit me I lost all hope of the future. I had just started taking my driving license but stopped that project immediately. Now 8 years later I can easily tell people about RP, I dare to ask for help in dark places without feeling stupid and I feel hope again. I think that this REY project is a terrific thing and I hope that more and more people get involved. After the meeting in Athens I felt very happy and the people who participated gave me a lot of positive feedback and no one seems really handicapped.
Except from having RP I am a very active woman who loves to travel, meeting new cultures, doing aerobics and participate in cultural events such as theater, movies and read books. At the moment I am working by the famous icehotel in Jukkasjärvi (most northern Sweden) but my plans are to start study til autumn at a programme about developing countries which include a 3-months journey to Africa.